Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness, Second Edition
Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness, Second Edition Books
- ISBN13: 9780393320657
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Product Description
Unlike a leg in a cast, invisible chronic illness (ICI) has no visible symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors’ understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They result in the resource material, including Web sites, up to the bestow, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
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Donoghue and Siegel are taking a psychological approach to persons with invisible chronic illness, but even so, don’t really have much that’s new to say. They have the standard chapters on dealing with diagnosis, initially coping with trying symptoms, how illness affects the family, etc. They also have a chapter on the Health Care system that is typical of chronic illness books and REALLY bothers me – it’s the usual tract on being a excellent patient and what the doctor needs from you. Most of these “types” of chapter acknowledge what you need from a doctor but make a top of saying you aren’t likely to get it – a truism, but never simple to hear and it everlastingly angers me that in addition to being sick, we have to do all the work for taking payment of our health care too!
This book does have strong points, don’t get me incorrect. The premise that “consciousness of your tale can free you to know yourself more deeply and to exchange in directions that make your life more livable” is very right and the authors strongly encourage individual therapy to support people in their quest for mental health during a chronic illness. The chapter on empathic listening is one of the most constructive tools I’ve seen in this type of book yet, and would be a boon to relationships in which no chronic illness was bestow! But, with two authors and often disjointed chapters and writing, I wondered about the sophistication of editing this book experienced. My recommendation would be to turn to other sources before consulting this one.
Rating: 2 / 5
As an RN, I know there is a fantastic deal of bias in the medical community when it comes to chronic illness because it does not bestow itself in overt, visible ways. This book gives the reader a fantastic deal of insight into what it is like to suffer from an illness that is invisible. Excellent reading for any healthcare source. When we walk in someone else’s shoes, compassion comes more easily. It also gives encouragement to the individual who may question the validity of their malady.
Rating: 4 / 5
BOOK DELIVERED QUICKLY GREAT CONDITION …A GOOD BOOK FOR EVERYONE WHO IS TAKING CARE SOMEONE WITH A DISABILITY OR IF YOU SUFFER FROM ANY OF THE DISEASE MENTIONED IN THIS BOOK. FOR EXAMPLE, MS, CHRONIC FATIGUE, FIBROMALGIA, LUPUS, LYME DISEASE, CHARCOT,TOOTH, THIS BOOK TELLS IT LIKE IT IS. WHAT THE VICTIMS OF AN INVISIBLE DISEASE GO THROUGH ON A DAILY BASIS,
THANKS
Rating: 5 / 5
As someone who suffers with more than one ICI, I found this book to be both a comfort and a help. Even as some of the medical descriptions are slightly out of date, the confirmation and understanding of the emotions that are an vital part of the ICI experience are aptly on target. Even as the chapters about treatment and therapy are not as detailed as I would have liked, they did offer a excellent starting place for me to talk with my doctor about matter-of-fact steps I may possibly take to improve my quality of living. A link chapters reminded me of “Psychology 101,” but the majority of the material was worth the read.
Rating: 5 / 5
This is one of a handful of books that give insight and help to a problem that is killing people, if not eating them up alive.
The handbooks that are available for this topic are few, but those that are there are brilliant.
The exposition and the methods made available by this book is truly a life saver. In many respects though, we still have a long way to go. Progress will not be made unless the surgeons who handle the sufferers of this disorder/disease are made to know what is happening. It is a very real come forth, and there are some rehab staff who see it all too often, but the high paid Doctors do not acknowledge this come forth.
An brilliant accompanying book for this one is CRY OF THE DAMAGED MAN… and it is a traumatic book, but it shows how one general practitioner came to realise what his patients were going through.
I have had people I know and care for treated look psychos by the establishment Doctors.
One of the most terrible places to have this range of problems is in Australia, particularly Victoria, Australia, and Tasmania , Australia.
A relative of mine in Tasmania had a horrible accident that left him with life long pain, which the Doctors and his immediate family all said were psychological. He suffered for a lifetime, and eventually killed himself to stop the pain. A link of family members knew what he was going through and believed him. They helped him immensely, but the Doctors he was treated by were educated during the period of B F Skinner, and such a horrible legacy that man Left that it warped several generations. Including the perpetrator of some vicious books, Ainslie Mears… a Doctor very affected by B F Skinner.
In Victoria, the TAC sentences people with the problems described in this book to a lifetime of pain. The Victoria, Australia government body is all about money; there is no humanity in it. In one case a supporter came to the United States for diagnosis and a treatment regime, and upon returning to the Vicious Victoria, the Doctors were livid with rage that she had gone to a place that understood her problem; she had dared to question their “God” like authority.
For those of you reading this who do not have the problems covered by the rubric of Chronic Pain, or the so called Invisible Chronic Pain, you need to learn; some people you know may be going through this, and whilst you cannot truly know the pain, the words to say that mean the most are, I’ll be there for you.
Gradually these pain problems are being truly documented thanks to major advances in technology. The Doctors who have denied the existence of this problem have a lot to resolution for, and in some cases have blood on their hands.
This is truly a leap forward book.
There are ways and means available now that can help manage these pain problems. Eventually there will be treatments. If you know someone who is going through the problems discussed in this book, a gift of this book may very well be a life saver.
This book made a difference for me, as has the various other books in this area; also, Emmett Millers work has been of vital importance.
Rating: 5 / 5