Coping with a Myositis Disease
Coping with a Myositis Disease Books
Product Description
Myositis refers to inflammation of the muscles (“MYO” means muscle and “ITIS” means inflammation). Myositis is a mystery disease in several diseases:
Polymyositis (PM) means inflammation of many muscles.
Dermatomyositis (DM) means inflammation of many muscles and skin
Inclusion Body Myositis (IBM) means inflammation of many muscles with “Inclusion” (abnormal protein deposits) and vacoules (holes) in the muscle cells and fibers. Effectively 95% of physicians are unlearned about this chronic, lifetime muscle disorder. So small in rank is given to the patients after they have finally been diagnosed, but offered no further in rank about the future expectations might be.
The four Myositis diseases have individual case reports from patients with the diseases, telling how the disease affected them, their families, their working and the dark future that no physician had told them would happen.
The Myositis patients are telling their tales to help newly diagnosed Myositis individuals learn more about the disease, what to guess. Several Neurologists who have read the tales have said the book will be a fantastic teacher to the medical profession because the tales give a glimpse into the daily life, the philosophy on the mind and inner workings of the patient’s body; even as the medical profession can only ascertain what they learn through diagnostic procedures.
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I personally bought this book after purchasing many Medical Textbooks dealing with Dermatomyositis, Polymyositis, Sjogrens, Psoriasis, and auto-immune diseases in general. Why, because I have these uncureable diseases and have been suffering with a more severe case for the past 3-5 years with no hope for a cure, no sign of remission, and still hoping for relief and a more mnormal life. My largest problem has been getting my family, friends, and doctors to have some kind of thought what I am going through. I also had to deal with doctors who plotting I was first imagining this and refering me to a psychiatrist instead of a rheumatologist or neurologist who may possibly have ongoing treating me a lot sooner and I would probably be able to use my muscles today.
This book has 50 of the greatest patient tales that can be applied to patients with all 385 Auto-immune disease and probably even cancer patients as well since these diseses are associated with cancer. Reading these tales will make a grown man tear up and have joy that I am not nuts, just depressed because of my pain and suffering. You will gain a better understanding of the Myositis diseases, patients who don’t have all of the symptoms, patients who have most of the symptoms, and patients who have more symptoms above the medical definintions of the specific auto-immune diseases. For example when the doctor tells you that you have Polymyositis or Dermatomyositis and only the proximial muscles can be caught up, and in fact you have the distal muscles also caught up. Or when you are misdiagnosed with Polymyositis instead of Dermatomyositis because the doctors don’t see the rash at its worse flaring time and finally you show up with Gottron Papules all over your knuckles, Helitope on your face (eyelids, bridge of nose), and V Sign on your neck and upper chest and then he tells you that is part of the Dermatomyositis, all you can say is Thank You for the new diagnosis. But I learned to know why doctors proceed with caution on their diagnosis and then adjust as the disease progresses to be more defined signs.
Fantastic book and in my attitude should be printed with a newer revision some day with more tales from those patients who can still write and provide insight to this kind of book.
Thank you to the patients, authors, and editors of such a fantastic book.
This book was delivered as promised via Amazon.com. I may possibly not place the book down for a few days until I read it. It told me everything I sought after to know about Autoimmune diseases and more, and gave me much more appreciation for my Rheumatologists Doctors Philip Sedrish and Marielisa Sedrish at Gulfcoast Rheumatology at Slidell Memorial Sickbay. They have been doing everything like clock work with me and I have been a very trying case for especially for Dr Philip Sedrish. These doctors are certainly experts in Rheumatology and all the other Auto-Immune Neuromuscular and Skin Diseases such as (RA, PM, DM, IBM, Sjogrens, Scleroderma, Lupus, ALS, etc…) that go by the side of with their specialty. They referred me to the best specialists: Dermatology – Dr Eric Tabor; Cardiology – Dr Ignatius Thomas; Pulmonology – Doctor Dennis Dale and Doctor Janine Parker; Opthamology- Dr David Slagle; Gastroenternology – Dr Anthony Albright. These doctors all work well with each other and me to address all my symptoms associated with Dermatomyositis, Sjogrens, and Psoriasis. Thanks to these doctors, I have not had to drive 100 miles a trip to the MDA Clinic at Children’sHospital in New Orleans or even further as may others end up doing.
Thank you to the authors of this book and my friends from The Myositis Association, Polymyositis and Dermatomyositis forum.
I urge this book to anyone diagnosed with a Auto-Immune Disease and associated Cancer.
Bill Morell
Diagnosed with Dermatomyositis, Sjogrens Syndrome, and Psoriasis.
Rating: 5 / 5
This book is only testimonials from other sufferers. It will give you “ah hah” moments to let you know you are not lonely with this affliction, but it doesn’t really tell you anything to help your situation.
Rating: 2 / 5
The Coping with Myositis disease is a fantastic book & very informative. I had ordered this book for myself about a year or more ago & this one I bought for a supporter. She was also exited about it. It’s almot imposible to find in rank about Inclusion Body Myositis.
The quick delivery was incredible & especially nearly the holidays. Thank you very much for making this available.
Rating: 5 / 5
This was a very fascinating, although to some extent demoralizing, book. It is a group of case studies told by the patients who suffer from myositis. Often the cases seemed quite hopeless, therefore, it was hard for someone also suffering the disease to have much hope. The book also should have been edited for grammatical mistakes.
Rating: 4 / 5
There are very few publications out there providing supporting in rank for Myosis sufferers. This one provides a fantastic insight into the disease as well as the specific variations ie (DM). The case studies are particularly fascinating and helpful. It’s fantastic to see how others are coping with their disease and how most are recovering well. This is an American publication, I have not managed to find any UK publications for this shape up.
Rating: 5 / 5